Waiting For Surgery

You guys.

I'm not even the one dealing with the hard part and it's brutal.

This poor man.

We have 9 days until The Surgery That's Supposed To Give Him Relief. 

We are counting down the days.

We have gotten into a "routine" of sorts. 

It's rough. I don't even know how he's coping.

The days are all over the place in terms of how he's feeling.

Some days he'll "wake up" feeling "ok" and when I say that, he tells me he's at a Pain Level 2-3 (out of 10). And he man doesn't sleep for more than 1-3 hours at a time. If he gets 3 hours in a row, we count that as a win.

If he remains in one position for too long (more than say, an hour?) he will have a hard time moving from that position and he's at a Pain Level 5-6. 

He's feeling more and more restless, too. I don't blame him.

There's only so much TV one can watch. 

And, through all of this, he can still say to me "at least I get to be home with family for a while, I'm enjoying spending all this time with you" THIS MAN. 😭

He's in SO much pain and that's what he thinks of. 

On one of the days when he was at least walking, he picked up some games and toys for the girls.

We have enjoyed several "Family Nights" lately. 

Thank goodness for my mom - she has been cooking for us so I don't have to cook more than like once a week. Moms are awesome like that. 

We told Ava that her greasy, sticky fingers were NOT allowed. (And WOOF check out the bags under my eyes! Ha!)

Last night (Monday night) was TERRIBLE.

He ran out of meds, both the nerve meds and the narcotics, so we knew it was going to be rough. But we didn't know HOW ROUGH.

On medication, once we got him into position, he'd be ok for maybe 2-3 hours. 3 at the very most. But it'd be a little. 

Without medication? Holy fuck. The Poor Man. 

We never even got him settled because after 30 minutes he'd have to switch positions again. 

So I got up each time to help get all the pillows and such set up while he propped himself up on our dresser. Then I'd go back to him and he'd use me as a crutch to get back to the bed so he could kneel again. 

So I was able to sleep here and there for a few hours at a time but he was not. He got himself up once, I think without waking me, but told me he barely made it. 

We called the neurosurgeon right at 9am this morning so he can call in more prescriptions for us. 

 

I don't know how he's supposed to make it 8 more days like this. 

Not to mention, I just started my new job and I'm SUPER paranoid about not "being at my best" during this time because I'm juggling the kids, Steve, homeschool, dogs, house, cooking, laundry, etc. Everything.

Which of course I'll do, but man, I'm also on the verge. 

Thankfully I have a village finally and help and support with the kids. I picked the girls up Monday afternoon and will be bringing them back to my mom's Friday after school. The plan is to pick them up Saturday night or even Sunday morning. They'll hang with Steve Monday and Tuesday. I'll then take them back to my mom's house Tuesday evening and they will stay with her until Wednesday night - after Steve's surgery and he's home resting. Then I'll take them to school Thursday, like normal. 

Wish us luck as we get through this next week. I'm not exactly sure how we're supposed to do it.